Risk Disclosure and the Recruitment of Oocyte Donors: Are Advertisers Telling the Full Story?
By Hillary B. Alberta, Roberta M. Berry, and Aaron D. Levine | Journal of Law, Medicine & Ethics (Neurosciences Summer 2014, pp. 232 – 243)
From the study’s abstract:
This study analyzes 435 oocyte donor recruitment advertisements to assess whether entities recruiting donors of oocytes to be used for in vitro fertilization (IVF) procedures include a disclosure of risks associated with the donation process in their advertisements. Such disclosure is required by the self-regulatory guidelines of the American Society for Reproductive Medicine (ASRM) and by law in California for advertisements placed in the state. We find very low rates of risk disclosure across entity types and regulatory regimes, although risk disclosure is more common in advertisements placed by entities subject to ASRM’s self-regulatory guidelines. Advertisements placed in California are more likely to include risk disclosure, but disclosure rates are still quite low. California-based entities advertising outside the state are more likely to include risk disclosure than non-California entities, suggesting that California’s law may have a modest “halo effect.” Our results suggest that there is a significant ethical and policy problem with the status quo in light of the known and unknown risks of oocyte donation and the importance of risk disclosure to informed consent in the context of oocyte donation.
Please contact us or the journal directly for a copy of the full study.
The Cost of Life
By Justine Griffin | The Sarasota Herald Tribune | 2014
In this article, organized into chapters, the author describes her own experience as an egg provider and details the stories of others – including one woman who has so little trouble that she donates five times, and another who develops severe endometriosis symptoms.
One night last summer at my parent’s dinner table, I told my mom and dad that I wanted to help somebody have a baby. The usual lively suppertime conversation and laughter died down, and my parents lost their appetites. They didn’t want to joke about that time I drove my brother’s four-wheeler into a tree anymore.
I told them I am like the thousands of other women — the daughters, sisters, girlfriends or wives at someone else’s dinner table — who donate their eggs to couples who cannot conceive a child on their own.
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The Incidence of Both Serious and Minor Complications in Young Women Undergoing Oocyte Donation
By Kara N. Maxwell, M.D., Ph.D., Ina N. Cholst, M.D., and Zev Rosenwaks, M.D. | Fertility and Sterility (Vol. 90, No. 6, December 2008, pp. 2165 – 2171)
From the study’s abstract:
This study provides information on the incidence of serious complications experienced by oocyte donors after controlled ovarian hyperstimulation and oocyte retrieval. It provides evidence that with careful monitoring, and when a liberal cancellation policy is followed, oocyte donors experience lower rates of ovarian hyperstimulation syndrome, compared with infertile women undergoing IVF. Furthermore, the study provides the first set of data on the rate of symptomatic minor complications experienced by oocyte donors. This information will help clinicians administer appropriate informed consent to the young women who present themselves as potential oocyte donors.
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Cracked Open: Liberty, Fertility and the Pursuit of High-Tech Babies
By Miriam Zoll | Interlink Publishing Group | 2013
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Foreword by Judy Norsigian, co-founder and former executive director, Our Bodies Ourselves, and Michele Goodwin, director of the Center for Biotechnology and Global Health Policy
From the book description:
Cracked Open is Miriam Zoll’s eye-opening account of growing into womanhood with the simultaneous opportunities offered by the women’s movement and new discoveries in reproductive technologies. Influenced by pervasive media and cultural messages suggesting that science had finally eclipsed Mother Nature, Zoll –– like millions of women –– delays motherhood until the age of 40.
When things don’t progress as she had hoped, she and her husband enter a science-fiction world of medical seduction, capitalist conception and bioethical quagmires. Desperate to conceive, they turn to unproven treatments and procedures only to learn that the odds of becoming parents through reproductive medicine are far less than they and their generation had been led to believe.
Visit Miriam Zoll’s website to learn more >
Watch Miriam Zoll talk about her experience with infertility, IVF, and the search for an egg provider in an excerpt from The Cycle Forum.